this post was submitted on 28 Mar 2025
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Autism

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Terminology: on the spectrum (discuss.tchncs.de)
submitted 4 days ago by port443@discuss.tchncs.de to c/autism@lemmy.world
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To me, it feels like it is some sort of desperate attempt to not say 'autistic'/'autism', but I don't fully understand why. Most people I've seen using 'on the spectrum' are either actively questioning whether they or someone they are close with are autistic, or think it but don't care all that much. Personally, I find referring to autism as 'the spectrum' a bit offensive, as the only reason I can find to use the term is to forcibly emphasize that whoever is referred to (hereafter: 'me', although sometimes I am a spectator) is not like other (higher needs, lower perceived status) autistics. They suggest that they think badly of autism this way, and ungroup me from that group so it's not insulting (but it is, to the entire group and thus to me, who is, could be argued, also insulted directly). Although I know that basically everyone perceives people unalike themselves as 'worse' (human nature sadly) and it isn't on purpose, it is still very insulting to me. I already knew I was a joke to most people, so please don't make fun of me for things I have trouble with. Am I wrong about the reason people use the term? Do you agree or disagree and most importantly: why?

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[–] meh@lemmy.blahaj.zone 3 points 4 days ago

halfway through responding i talked myself out of my own opinion on this. language changes and i think "on the spectrum" is coming to the end of it's usefulness. it was helpful for a time but now i only use it at work in the context of "i'm just grasping for language that will make you understand how to communicate with me".

On the spectrum is a helpful middle ground when exploring the topic though. And it was a very helpful middle ground when every discussion of autism seemed to devolve into clinical diagnosis vs awareness that the medical system in most countries is a dumpster fire. getting my son diagnosed took very little effort. when i looked into it for myself 6 yrs ago, the clinician was helpfully blunt with "look unless you need accomodations dont put yourself through this yet. theres one person in this state who can diagnose in adults and it's a 2 yr wait list to start the 1 yr $1200 out of pocket process".

a friend got her offical diagnosis about 6 months ago and the process has by her description, improved and shortened significantly. so i may explore that again. at this point outside work i just use autist/autism, but at work i still use spectrum. I do agree the language is aging out of broad usefullness, but i don't believe it's something i'll be bothered by for a long while still. i get your frustration with it. I think we're in that be kind and let people use the language they're comfortable with period for the spectrum. it may die off or it may become elder millenials term for ourselves as aspie has for some genxers who grew up before the spectrum entered the dms5.