Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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Currently on year 5 of a chronic injury that doctors have basically given up on and sent me to physical therapy for. I'm a year into that with little to no results. Eventually they'll give up on that and send me to a specialist that shoves a very large needle deep into me every 2-3 months to inject numbing agent to just permanently numb it for the rest of my life.
I can't tell you how many times I've imagined temporarily transferring the pain to the doctors or my friends/family so they can just fucking understand. Or how many times I've considered blowing my brains out.
Enjoy your body while it's young, folks. You'll come to hate it eventually.
It's not naturally like this. Has little to do with age itself.
Have you looked into EDS? Because I have EDS and that sounds just like me.