this post was submitted on 25 Jun 2025
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Lemmy411 - Don't know where to find what you're looking for?

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As with /r/411 this is where you ask what Community you're looking for but not finding. Perhaps a bit more helpful now that some communities are only found on certain instances.

Found/new community announcements - there are numerous "announcement type communities - see https://lemmy.ca/post/612532

There is also !wowthislemmyexists@lemmy.ca

Before you request There are several resources available to find communities and resources and these have been pinned to the top.

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  1. Don't be a jerk or be deliberately unhelpful
  2. Please post a clear easy to understand request for a community (or instance!)
  3. Pls no NSFW requests - if you want to create /c/NSFW411 go ahead.
  4. No posting of personal information
  5. Please refrain from suggesting users should use search engines or directories.
  6. No joke, troll or misleading suggestions or requests
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Menieres is a disorder of the inner ear with the most pronounced symptoms being vertigo and hearing loss. I'd be happy with any mildly related communities also such as for non-visible disabilities, permanent progressive illnesses, hard of hearing, deaf, etc. I haven't found anything through searches yet and I'm not experienced enough to create or moderate my own community. Thanks!

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[–] Mnem667@sh.itjust.works 3 points 1 week ago (4 children)

If you find anything, lemme know. Ménière's disease sucks, and my left ear is pressurized currently.

[–] thicksliceham@mander.xyz 1 points 1 week ago (3 children)

It most certainly does suck. It's be great to have a place where we can vent, talk about what triggers attacks and what helps prevent/soothe attacks. There was a sizeable community on Reddit, and I miss that resource.

If you don't mind me asking, how long have you had symptoms/been diagnosed? It's been an eight year struggle for me, but only recently diagnosed after moving states and seeing a new ENT.

[–] Mnem667@sh.itjust.works 1 points 1 week ago (2 children)

it's been roughly 7 years on the diagnosis, maybe 8 or 9 for the symptoms. I had a pretty good ENT.
I didn't know there was a subreddit for it, that may have helped me lol

I've been mostly managing with magnesium and hydration, but for some reason this last couple of weeks, it's really kicked in hard

[–] thicksliceham@mander.xyz 1 points 1 week ago (1 children)

Hydration is super underrated!

Sorry to hear you're having it tough lately. I have been too, and that's why I was trying to find the right group here to chat it out lol. I'm honestly surprised there's no community that's remotely relatable for what we're going through.

[–] Mnem667@sh.itjust.works 1 points 1 week ago

Coincidentally, finally released today after about 3 weeks of variable plugged. Yay for vertigo! Wasn't too bad today, because it released slowly. Hope yours works out soon.