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this post was submitted on 26 Jan 2024
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If this forces 23andMe to shutter, some other tech firm will gobble up that genetic data without the original users having any agency in the decision. Imagine having your genes create value for others and you only get the liability? Oof.
Don't they already package and sell your genetic data anyway?
Yeah download and delete your account + data if you still have one.
Do we know they delete the data when you do that? A lot of software is designed to "soft delete" data, where you mark the record with a "deleted" flag that excludes it from future queries. This data still lingers in the database and would still be accessible by anyone who can bypass the application logic, such as someone with a direct DB connection and read privileges.
and let's not forget that it was stolen, so it's probably being sold right now anyway.
https://www.hopkinsmedicine.org/henrietta-lacks/immortal-life-of-henrietta-lacks