this post was submitted on 12 May 2025
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[–] LillyPip@lemmy.ca 198 points 2 days ago* (last edited 2 days ago) (18 children)

Just so these dipshits know, I’m already feeling the cuts to Medicare/Medicaid staffing and services.

I live in the US and rely on Medicare because I’m fully disabled, to the point of being homebound.

Apparently the division that deals with remote visiting technology has been cut, so they can’t legally fill my prescriptions anymore unless I physically travel nearly an hour to their office every 3 months to remain eligible, and my doctor can’t legally renew medications that I’ve been on for 20 years. Within a couple of months I’ll have to stop taking all of my long term maintenance meds because I cannot travel to their office.

This will remove all my quality of life and will kill me slowly. I don’t want to die slowly of neglect, so I’ve got a decision to make, and I’m putting it off because I really don’t want to die yet.

I don’t know what to say except I have a name. I’m Lilly Piper. I’m a very good user experience designer, a pretty good writer, and decent friend.

We’re not faceless or nameless. I just want someone to remember that there are names behind these policies.

I’m good at sewing; I make period correct corsets from the 1800s and before (proof and more proof).

I’m actually great at sewing. I do embroidery and am a great listener. I’m also a good writer and editor. I didn’t need to die like this, but I won’t be homeless again, and I won’t beg in the streets for medicine. I just won’t.

e: links

[–] ZBennoui@dragonscave.space 10 points 2 days ago

@LillyPip @inclementimmigrant This is fucking insane, it's 2025, but these assholes want to take it back to like the 1900s for no reason at all.

IDK what else to say other than this admin needs to be stopped, and it has to happen now.

[–] DarthKaren@lemmy.world 7 points 1 day ago (1 children)

I'm a disabled vet. I'm unemployable. SSDI is the only thing that makes things breathable for us. The only real way I have to make any money on the side is by painting DnD minis, dice towers, or maybe Gunpla commissions. It's so difficult to do much in a day that it takes me quite some time to paint just a couple minis. Months on a gundam. I just don't have the stamina to do much in a day. Fatigue is killing me. I've got a few painted, but I haven't had the energy to put them up anywhere yet. I have just as many to paint still.

Body wide small fiber neuropathy, a central nervous system issue and colon removal really tanked me. Winter (Wa state) and fronts rolling through, even in summer, tank me even more. I think the change in air pressure is what does it.

A cut in medicare means that I also now have copays. I have tons of doc appointments still. No one can tell me what the root of the issue is, or at least prove it as it's very likely chemical exposures. All funding that would have led to a "here it is" was shuttered. Regular blood tests due to colon removal. Regular tests due to the fucked up nervous system, which is still progressing 20 years after the last exposure and 18 after it started.

My wife is a PARA, but we're in a low income area and PARAs don't make shit. From my excel math, we can make it by with no SSDI. However, we'll have absolutely no extra money. No money to replace clothes. No money for home repairs. No money for vehicle repairs. Before you say it, we do need them. Taking public transit is incredibly painful, and shitty at best. Plus I have no energy to do that. I can barely do the appointments I have, even driving myself the only 20 mins, avg, to the various doc appointments.

I feel like such a waste already. I love math. I love engineering. I love turning a wrench. I love cooking. I can barely do any of it. These assholes seem to think we're all grifting and "welfare" queens. Sad thing is, there are many more vets in my position. Yet many don't seem to realize that the GOP hates us. They'll keep voting for it. Voting for that shotgun to the foot and pleading for more like a gimp gagging daddy for more.

[–] LillyPip@lemmy.ca 2 points 9 hours ago

I’m so sorry. You shouldn’t be facing these cuts on top of everything else. I hope you can find some relief soon.

[–] match@pawb.social 64 points 2 days ago (1 children)
[–] LillyPip@lemmy.ca 47 points 2 days ago

Thanks. I appreciate that.

I’m not just talking about myself, but others like me. I’m Lilly Piper, but there are others like me. You can try to save all of us, and I would greatly appreciate your efforts.

[–] Fredselfish@lemmy.world 7 points 1 day ago (1 children)

As a fellow writer I don't want you to die. I bought your book can't wait to read it. Stay safe and if we on Lemmy can do anything to help please let us know.

[–] LillyPip@lemmy.ca 1 points 9 hours ago

Thanks so much! I’d love to know what you think if you read it. Let me know if you’d like me to read something, too!

[–] dryfter@lemm.ee 38 points 2 days ago (1 children)

I’d like to say I don’t understand what you’re going through.

I’m a 3x attempt survivor, disabled, and terrified. I’m on SSDI, Medicare/Medicaid, and in HUD housing. My situation is not the same but I see you.

I wish there was more I could offer, but you are not alone.

[–] LillyPip@lemmy.ca 22 points 2 days ago

I’m sorry. I wish you didn’t have to go through this. You don’t deserve that.

[–] inclementimmigrant@lemmy.world 27 points 2 days ago (3 children)

It's really disgusting how these self proclaimed Christians are so eager to discard the needy to give to the ultra wealthy.

There are still American out there are trying to fight to help disabled Americans like you and everyone else to be able to live a dignified life.

Hang in there.

[–] futatorius@lemm.ee 2 points 12 hours ago

Pharisees, liars, hypocrites.

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[–] xyzzy@lemm.ee 16 points 2 days ago* (last edited 2 days ago) (1 children)

This must be terrifying. I disagree with this new requirement to appear in person every few months for reasons just like this, and I'd like to share cases like yours when I talk to Trump voters. Would you be willing to share the condition that keeps you homebound and prevents you from traveling in person?

[–] LillyPip@lemmy.ca 18 points 2 days ago* (last edited 2 days ago) (2 children)

I’m happy to share my story with anyone.

I have a combination of rheumatological and genetic issues, including RA, Sjögren’s, Ehlers Danlos, severe osteoporosis, and a couple of related issues that have caused severe GI and heart issues. I can’t digest fruits or vegetables (they come out looking exactly how they went in) so my diet is severely limited, and I have seizures.

The drugs they’re saying I can’t have anymore include hydroxychloroquine, pilocarpine, prolia, and a few drugs meant to make my life more livable (tizanadin, gabapentin, mirtazapine, and ondansetron).

e: I can’t travel because of the seizures and that being out and about exacerbates my heart condition (SVT and periodic sinus arrest – I have a loop monitor).

I don’t take any opioids or anything like that, only things to keep GI cramps in check so I can at least eat a bit, plus metoprolol er and more paracetamol than is safe, because nobody is willing to even attempt to manage my pain at this point. I’m better at that through means that won’t ruin me physically or psychologically since I’ve had to for my entire life, since I was too small to have choices.

e2: Let me know if you want to know anything else. (edited to be a bit more specific)

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[–] DaddleDew@lemmy.world 208 points 2 days ago (1 children)

Oh look, that thing they said they wouldn't do but everyone who isn't their followers knew they would anyway.

[–] Auk@lemmy.world 46 points 2 days ago

😳😱🤯😮😲🙊😯

Anyway.

[–] SabinStargem@lemmy.today 17 points 2 days ago

Programs like SNAP are up next. The time to eating the rich is nigh upon us.

[–] N0body@lemmy.dbzer0.com 98 points 2 days ago (2 children)

at least $880 billion in cuts largely to Medicaid to help cover the cost of $4.5 trillion in tax breaks.

Don’t forget the purpose. They’re not cutting spending to “balance the budget.” It’s to pay for a fraction of the tax cuts they’re giving to the parasite class.

[–] paperazzi@lemmy.world 45 points 2 days ago (2 children)

I think from now on we should only use the term "parasite class" when talking about the elites, the 1%, the billionaires, the wealthy, the rich, the landlords. Make it a habit, maybe even trendy. Parasite class. I like it.

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[–] Ledericas@lemm.ee 22 points 2 days ago

the tax cuts in 2017, saved the billionaires around 1.7-2.4trillion, this is double that. plus the continuing pillaging by trump.

[–] fnrir@lemmy.blahaj.zone 44 points 2 days ago
[–] threeduck@aussie.zone 10 points 1 day ago

100s of years ago, your ancestors boarded boats to come to America for a better life.

Are you so indolent and pampered that you'll whinge and complain in America until you die?

Leave, GI, your country is abandoning you. Take your skills and education and emigrate to a country that treats you with respect, GI.

[–] Ioughttamow@fedia.io 113 points 2 days ago (3 children)

It’s not death panels, it’s the market telling you to die

[–] Geetnerd@lemmy.world 54 points 2 days ago (1 children)

For-profit Health Insurance companies are death panels, always have been.

Profit Uber Alles.

[–] captainlezbian@lemmy.world 11 points 2 days ago (1 children)

They killed my mom. I won't forgive them for that

[–] Geetnerd@lemmy.world 4 points 2 days ago

You shouldn't.

[–] floofloof@lemmy.ca 55 points 2 days ago* (last edited 2 days ago) (2 children)

Yay freedom!

Keep an eye on RFK Jr. though. He seems like the death-panel eugenicist type.

[–] disguy_ovahea@lemmy.world 33 points 2 days ago* (last edited 2 days ago) (1 children)

He’s already appointed his first eugenicist. David Geier is who RFK is having conduct the ‘study’ on Autism. He and his father previously experimented on autistic children in his basement by giving them Lupron injections, which cause chemical castration. He was prosecuted in Maryland for practicing medicine without a license, and his father had his medical license revoked in the process.

RFK said he was going to identify and eliminate the cause of autism. The cause of autism is DNA.

[–] bassomitron@lemmy.world 25 points 2 days ago (2 children)

I thought this was hyperbole, but holy shit, David Geier is a horrible person. His dad was equally a piece of shit.

https://www.the74million.org/article/head-of-new-rfk-jr-vaccine-study-practiced-unlicensed-medicine-on-autistic-kids/

https://en.m.wikipedia.org/wiki/Mark_Geier

Further proof that the US is never going to fully recover from this insanity.

[–] futatorius@lemm.ee 1 points 12 hours ago

Never is a long time. Whether we recover is up to us, and how far we're willing to go.

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[–] UpAndAtThem@lemmy.world 18 points 2 days ago

I am Jack's complete lack of surprise.

[–] MunkysUnkEnz0@lemmy.world 35 points 2 days ago (3 children)

They're trying to kill as many people as possible, What disgusting human beings.

Why can't this be stopped? I don't understand. They're dismantling the federal government and destroying America piece by piece.

keep in mind He's already killed maybe millions of people during COVID.

Thump May I go down your history as one of the biggest Butchers in history.

[–] Zenith@lemm.ee 13 points 2 days ago (3 children)

This can be stopped but the GOP is unwilling to do the legal process to stop him

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[–] crossover@lemmy.world 8 points 2 days ago* (last edited 2 days ago) (1 children)

People had their chance to stop him last November. A third of those eligible didn’t even vote.

Now it’s up to the courts. The other branches of government are controlled by a deranged Authoritarian and his sycophants.

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[–] fnrir@lemmy.blahaj.zone 9 points 2 days ago

Remember that time conservatives said they needed guns to defend themselves from a tyrannical government?

[–] SinningStromgald@lemmy.world 48 points 2 days ago (4 children)

“Savings like these allow us to use this bill to renew the Trump tax cuts and keep Republicans’ promise to hardworking middle-class families,” said Rep. Brett Guthrie of Kentucky, the GOP chairman of the Energy and Commerce Committee, which handles health care spending.

How the fuck are tax cuts for the wealthy gonna help the nearly nonexistent middle class?

[–] match@pawb.social 29 points 2 days ago

republicans think the middle class starts at 100 million dollars

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[–] centof@lemm.ee 48 points 2 days ago (2 children)

How conveniently timed, right after Trump's EO to supposedly reduce medicine costs. Definitely no distractions or collusion there.

Whaaat, the EO that the stable genius claimed will save "TRILLIONS OF DOLLARS"?

“It really does seem the plan is to ask manufacturers to voluntarily lower their prices to some point, which is not known,” Sachs said. “If they do not lower their prices to the desired point, HHS shall take other actions with a very long timeline, some of which could potentially, years in the future, lower drug prices"

That executive order?

You think he would write a toothless, narrowly-focused, bullshit executive order as, what?

A distraction?

From the massive cut to medicaid? That he and his entire party promised a thousand times over they would never do? That will absolutely, directly, fuck over not just Americans on medicaid - but all Americans? Everywhere?

If you didn't know, the Center for Medicare and Medicaid Services (CMS) is far more than just an insurance provider! It's a critical part of our healthcare system.

As most nursing homes rely almost exclusively on CMS funding, they also have to obey CMS rules if they want to get paid. Rules which - in a lot of states - are basically the only thing keeping grandma alive!

The piss-poor quality of elder care in this country can and will plummet even further if CMS was ever reduced in scope and funding. That would be horrifying and evil.

Can you imagine, a sitting president willfully dismantling a load-bearing pillar of our society like that? And lying about it? In writing?

Were you aware that much of our problems in US healthcare - in one way or another - tie back to CMS not being allowed to negotiate drug prices at all? At least until recently in 2022, when democrats pushed a bill that at least allowed some drug prices to be negotiated?

Which is why an executive order would ever be necessary - because CMS, the single largest American insurance provider, is legally not allowed to negotiate most of its drug prices, and instead just has to take what it gets?

And you think a sitting President would do that? Write a bullshit executive order as a distraction? Set up a faux protest from major pharmaceutical companies, who have a vested interest in privatizing as much of the healthcare industry as possible?

Pharmaceutical companies who will loudly complain about the executive order on maybe-potentially-in-the-future reduced drug prices, but for some reason keep funneling money into the Republican warchest?

All while he further hamstrings the literal life support system for senior citizens in America? Claim he's saving us trillions of dollars, while quietly pulling the plug on our most vulnerable neighbors?

You think he would pretend it's for our sake, even though the downstream effects of forcing people off health insurance inevitably leads to abandonment of all routine, preventative care? An ounce of prevention is worth a pound of cure, you know!

All those poor patients will then get debilitating mountains of illness where there should have been easily treatable mole hlls, the total cost to the healthcare system will skyrocket, local family health and preventative care services will suffer and bankrupt due to a sudden lack of insured customers, and chronically underfunded hospital systems in low income areas will collapse as they increasingly pay the costs of keeping their community alive!

And you think a sitting president would do that? Throw out a bullshit distraction while he pulls the trigger on a decades-long effort to collapse all public funding for healthcare? Send our rural and urban healthcare systems into a tailspin? Open up the floor for private equity to finish cannibalizing whatever's left, all for higher stock prices and earning reports?

Surely that could never happen in a civilized society.

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[–] burgerpocalyse@lemmy.world 24 points 2 days ago (1 children)

https://www.nbcnews.com/id/wbna11237564 Bush Jr did this 20 years ago and got so shellacked by the constituency that (coupled with the whole middle east invasion that accomplished nothing and killed a few people) made it so republicans and conservatives dare not refer to him ever again because of how toxic he is

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[–] Geetnerd@lemmy.world 32 points 2 days ago* (last edited 2 days ago) (12 children)

Unconscionable.

People who think they are literally Gods, and have more resources than they can ever deplete, hate the idea of giving anything to the society that allows them to exist.

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[–] DirkMcCallahan@lemmy.world 26 points 2 days ago (3 children)

Susan Collins and Chuck Schumer are very concerned.

[–] Geetnerd@lemmy.world 20 points 2 days ago

Oh, Schumer's going to stop being Mr. Nice Guy, and write a letter calling Trump a knave and a jackanape! Just wait and see!

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[–] CalipherJones@lemmy.world 4 points 2 days ago

It's only big and beautiful? Sorry Don I only accept the biggest and most beautiful.

“Hey sick Americans who rely on America to survive- fuck you!” - republicanazis

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