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this post was submitted on 16 Sep 2024
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Ask Lemmy
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Sorry to hear this.
An internet forum like Lemmy is not the best place for medical advice. Most diseases can vary significantly from person to person. Lupus comes in multiple forms. The musician Seal has a form of lupus, and he's 61. Autoimmune disorders are very complicated, because the immune system is very complicated.
Your doctor should be able to give you guidance and "what to expect" type information. If there is a patient portal or email you can use, be proactive and reach out to your doctor with your questions. If you're in the USA, patients very much have to actively navigate this stuff, and advocate for themselves. Your doctor might give you a pamphlet or booklet. Read it.
My doctor has given me all sorts of info on it. I was looking for more first hand account kinds of things.
Sorry for the misunderstanding.
You're good. I appreciate the advice. :)