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"Oh you're so lucky, I wish I could spend so much time in bed"
(lemmy.blahaj.zone)
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this post was submitted on 17 Sep 2024
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Chronic Illness
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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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I guess I expect general empathy and respect from others idk? I wouldn't think this sorta of thing would be unheard of but I also wouldn't expect it to be the norm. I guess I imagined it would be relegated to a small amount of shitty people.
To answer you though I probably am out of touch, I don't go out much except for class and in those classes I typically don't talk to people. I have a few close friends I have had for years and haven't bothered making new ones.
Don't get me wrong though I have experienced general shittiness because I'm autistic but throughout most of my childhood I managed to just be ignored rather than antagonized.
I guess I just expect better of people idk, or maybe a part of me believes that the severe ignorance I see online is just fake or exaggerated.