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this post was submitted on 30 Sep 2024
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Chronic Illness
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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
Rules
- Be excellent to each other
- Absolutely no ableism.
- No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
- No denying or minimising challenges faced by chronically ill people. This is a support group, not a place for people to spout their opinions on disability.
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https://www.mayoclinic.org/diseases-conditions/chronic-fatigue-syndrome/symptoms-causes/syc-20360490 ?
Don’t let it get to you! You are probably awesome. Hopefully you will get better!
Also you should know that there are other diseases that can cause similar symptoms. I have mixed connective tissue disease. It causes me to have tremors, sleep constantly, and my biceps and calves hurt intensely after a little effort. It's debilitating. It took me a year to get diagnosed.
I'm not convinced that I don't have a connective tissue disorder. It sounds so much exactly like what I deal with, but I have been told that I don't have one. I've been told "maybe ME/CFS", but that doesn't explain all of my symptoms, particularly the most debilitating--the muscle fatigue and pain.