this post was submitted on 12 Aug 2025
38 points (95.2% liked)

Privacy

40932 readers
1095 users here now

A place to discuss privacy and freedom in the digital world.

Privacy has become a very important issue in modern society, with companies and governments constantly abusing their power, more and more people are waking up to the importance of digital privacy.

In this community everyone is welcome to post links and discuss topics related to privacy.

Some Rules

Related communities

much thanks to @gary_host_laptop for the logo design :)

founded 5 years ago
MODERATORS
 

This video explains how your medical data is shared without your consent.

you are viewing a single comment's thread
view the rest of the comments
[–] WindAqueduct@lemmy.ml 1 points 20 hours ago* (last edited 20 hours ago)

Here's a script you can send to your state legislators and governor:

I demand a state medical privacy law at least as strong as the Minnesota Health Records Act (Minnesota Statutes 144.291-.298). Here are seven types of disclosures that HIPAA permits without patient consent or knowledge, but which generally require patient consent in Minnesota:

  1. Disclosures of health information for treatment purposes, unless consent is not possible due to a medical emergency.
  2. Disclosures of health information to other providers for healthcare operations purposes. [Note: healthcare operations includes over 60 nonclinical activities, including business activities. According to Federal Register, Vol. 75, No. 134, July 14, 2010 (see pages 40872, 40906, 40907, 40911), your medical data can be shared with over 2.2 million entities, including 1.5 million business associates, without your consent or knowledge.]
  3. Disclosures of health information to payers for payment purposes.
  4. Disclosures of health information to outside researchers for medical research purposes. [That's right, non-consensual medical research is explicitly allowed by HIPAA, but greatly limited in Minnesota.]
  5. Consent of a patient’s authorized family or legal representative for disclosures of health information to funeral directors.
  6. Disclosures of health information for military or national security purposes unless the disclosure is specifically required by federal law.
  7. Disclosures of health information for law enforcement purposes, unless the disclosure is in response to a valid court order or warrant. [That's right, under HIPAA, medical providors are permitted to share sensitive health data without a warrant.]

Source: Mayo Clinic's Notice of Privacy Practices (link: https://www.primarycareondemand.mayoclinic.org/notice-privacy-practices)

Minnesota is the only state to have a comprehensive medical privacy law stronger than HIPAA. [State] should be the second.