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this post was submitted on 03 Nov 2023
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Risa
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Sorry buddy. I have cluster headaches and I know how debilitating they are. Seems new treatment for migraines is on its way, hopefully sooner than later.
Fuck cluster headaches too. I'm sorry for you as well. I've tried many migraine treatments. None work very well. Crossing my fingers.
My wife was given vitamin B2 (400mg) to try to combat her migraines, she had a weird reaction (possibly a series of things unrelated) and got hives, so didn't follow through, but I figured to pass along the possibly unconventional Med suggestion. (Also takes topiramate)
I was on Topiramate for a short while. It worked super well for the migraines, but I couldn't sleep for days at a time. I didn't last long on that one. I'm currently using Qulipta (preventative) and Ubrelvy (abortive)
Have you tried shrooms? Genuinely curious. And I don't mean that as a suggestion, I'm just wondering because I've read that psilocybin can dramatically improve symptoms for some people.
I had tried microdosing before but no good. A tank of oxygen was another treatment. Just not much you can do when the pain is a real 10. Thankfully it does seem you grow out of it. Since I hit my 30s the space between attacks grew and now in my 40s it's no longer 2x a day but a short period every other year. I still follow treatments just in case my son has those genes.
I've considered psilocybin. Bonus that it's now legal in Colorado. I'll have to investigate that some more.