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this post was submitted on 07 Dec 2023
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Right there with you! I remember saying multiple times in appointments that as long as my trajectory has a positive slope, I can’t be unhappy with my progress.
Yep, like at one point only needing my rescue med three times a week was an improvement. I can only take it three times a week, and would just have to suffer waiting till I could take more. Then it was two doses a week, and now at about 1.5. It's not good, but it's better. I'm not expecting miracles, I know it's incurable, but I'll still try for better.