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this post was submitted on 24 Mar 2024
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Autism
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I've ulcerative colitis and it's flared up. Medical advice is no to low fibre, no veg unless it's boiled soft like a mush, no garlic, no onions, no mushrooms, no red meat, no sweet corn. I can only eat white meat, fish, white rice, potatoes like mash, white breads like a loaf, bagels and brioche. I'm not being a picky eater, I literally can't eat some things because they'll fuck with my gut and make my disease worse. Fuck inconsiderate people.
That sounds tough. I once knew someone who had a medical issue with severe dietary restrictions like you, and a tone deaf coworker was like “haha at least you can lose weight, sounds great!” FFS
Tell me about it. My flare up started months ago and I've dropped a clothing size. Everything I have is baggy on me now. It's been so bad that I'm being put onto immune suppression medication in the hope I don't have flares again. I also have autism traits like sensory issues and being unable to make eye contact as well as poor reading of social ques.
I've also had stomach issues that cause sudden, rapid weight loss, and it all started with some weird food poisoning, but that sounds horrific. I realize how fortunate I am, now, and wish you the best and speediest healing.
Sounds like a state of permanent fight or flight causing chronic inflammation.
My recommendation based on similar issues would be to expand your working memory so that the world is less overwhelming. This will reduce your level of danger preparedness which will reduce your inflammation.
I'm really sorry, I had colitis and it was awful. I really hope you find some relief from it.
It's getting better day by day and I'm going on a biologic which suppresses my immune system so hopefully with the new med I'll rarely have flares again.
I’m sure your immune system will react to being suppressed by leveling out and calming down. Not like it was designed by evolution as a threat-adaptive auto-scaling autonomous war machine or anything, so no worries about telling it to go to sleep. I’m glad your doctors are so wise in the ways of science.
Sorry if that sounded sarcastic I just have very little faith in doctors. Are you at least talking to multiple MDs about your ulcerative colitis? Immune system suppression is truly a nuclear option here. What else have they tried?