DisabledAceSocialist

joined 6 months ago
 

Absolutely disgusting but barely anything will be done.

 

I made a post weeks ago about all the trouble I've been having with my prescriptions, the doctors and pharmacists complaining that I'm costing the NHS too much money and trying to reduce the amount and quality of my meds, not on health grounds, but purely on cost grounds, and the detrimental effect it was having on my health. Also being bullied into taking contraception, which I don't want or need.

I received help on here writing a letter to the GP, trying to get them to stop bullying me over contraception and give me the meds I need in the quantities I need. I just heard back from them, and the letter worked! They will continue to prescribe my migraine meds without insisting I take contraception, they will increase my dose of my other med to daily instead of trying to fob me off with only 8 a month, and they will go back to giving me enough eczema treatment.

Thanks so much for the help!

 

I'm making a post on mutual aid too, but sometimes I make posts on there, even up to three over a week or so, and get no response. I understand there are so many people needing help there and so I am making one here too for extra visibility. My last request on here asking for help with medical supplies didn't get a response, I really hope this one does.

A couple of people on here over the past few months have helped me out before, and I am so grateful. There is no way I could have managed without your help. For those who haven't seen my posts before, I'm in the UK and going through a disability benefit appeal. I've been unable to buy food due to lack of money and all the people who are supposed to help - the food bank, citizens advice, macmillan etc, haven't given me the help I need.

The food bank can take up to two weeks to access and then give only three days of "food," and the food mostly consists of tea, coffee, milk, sugar, doritos and similar things that are non-nutritious and non-filling. Organisations like macmillan and the citizens advice just keep fobbing me off and passing me to each other. No-one wants to take responsibility. The good social worker I had who used to help me moved to London and the social work department is now staffed by bureaucrats who do the bare minimum to get their paycheque. So I had no-one to help me until I found this site. I was starving for a while and ended up being diagnosed with several deficiencies but all they did was prescribe me iron and a few other supplements on the NHS. I still didn't get any food.

In fact I had thought I was going through an early menopause as my periods had slowed down so much it got to the stage I hadn't had one in months. But this month - after being able to eat normally for a while thanks to the help I've received on here - I got a normal period and realised that my periods had actually stopped due to malnutrition. Thanks to people on this site I am no longer amenorrheic.

I received a letter from the DWP (British benefit nazis) recently, saying that my benefit appeal is still in the queue, they have a backlog to get through before me. Which is their own fault, because they re-assess people too frequently. So this will be dragging on a while longer.

My grocery bills are also more expensive at the moment. I had foot surgery 5 weeks ago and I've been unable to wear shoes so I've had to order groceries for delivery, which costs more. I'm having another foot surgery on 24th April so it'll be like this for a while yet. I also need to use these vouchers for other things like toilet paper, literally everything I need.

As mentioned before, I would prefer not to take money because of the DWP. So if anyone is able to help me out with some food vouchers, I would be extremely grateful. Sainsburys supermarket gift cards are easy to order, and several supermarkets local to me are also on justeat. They can be ordered on various different ways and sent to my email address.

This site takes debit card, credit card and google pay:

https://www.sainsburysgiftcard.co.uk/

These sites take debit, credit card and paypal:

https://www.prezzee.uk/store/sainsburys-uk-gift-card/

https://www.prezzee.uk/store/just-eat-uk-gift-card/

This one takes crypto:

https://www.bitrefill.com/gb/en/gift-cards/sainsburys-in-store-digital-uk/

https://www.bitrefill.com/gb/en/gift-cards/just-eat-uk/

I would be so grateful for any help at all.

[–] DisabledAceSocialist@lemmygrad.ml 2 points 3 weeks ago (1 children)

See my edit. Definitely the owners starving her.

 

My landlady's dog was barking at the door this morning, so I opened it and there was a big brown, very skinny cockapoo-type dog out there. No idea how she got in, the garden is totally enclosed and the walls are at least 7 foot high. We checked the cctv in case someone had thrown her in but saw nothing. It's like she just materialised. We took her to the vet to see if she had a microchip and she does but they were unable to read it. They said we should call the local kennel to come and take her and now my landlady is waiting to hear back from them, but I'm worried her owners are neglectful or abusive, she's clearly starving and cried with terror when we took her to the vet. She seems to have a skin illness as well. I've checked online but no-one has reported her missing. I'm worried if she gets sent back to her owner she could end up being a breeding dog on a puppy farm or something, she looks so starved and neglected. we gave her some food and she wolfed it down instantly.

EDIT: Eventually with the microchip we found her vet. They told us the owner hadn't brought the dog for a check up for several years and that they had been concerned about the dog's welfare prior to that. They told us which road the owner lives on and gave us her phone number. we called and she checked outside and said her dog had returned. We checked in our garden and the dog was gone. So it looks like she went home of her own accord. However I am very concerned for her welfare. She's skin and bones, untreated skin condition and clearly in this cold weather her owners leave her locked outside for so long they don't even notice she's missing.

I tried to make a report to the RSPCA but without an address, they won't take a report. I asked the dog's vet to call the RSPCA to give them the owner's address (because they obvs won't give it to me) but they are being difficult about it and not even wanting to get involved that much. I feel I must do something to help this poor creature. Does anyone know how to find an address using only a mobile phone number?

[–] DisabledAceSocialist@lemmygrad.ml 2 points 3 weeks ago (1 children)

It seems to me that humanity's collective nature has been broken down gradually. First we lived in tribes. Then extended families. Then, in living memory that got broken down into the nuclear family, where it became more normal to live with just your parents/kids instead of having an extended network of people to rely on. Now we're at the stage where the nuclear family is being broken down, many people don't even have that and many people are totally on their own, whether it's elderly people abandoned by their younger relatives, kids thrown out when they turn 18, a divorced parent and young child with no support from the other parent, an adult choosing to be alone. It seems to me this has been the plan all along. Maybe because it weakens humanity, we can put up less resistance against the super rich than if we collectivised. Maybe because it makes people poorer, struggling and paying bills alone, so they're more likely to fall into debt, default, and then the bank takes their property and so the rich own more of the world and the rest of us soon own nothing.

I read that it was normal for women to keep their body hair until razor companies started marketing ads towards women, making them think they'd be more beautiful hair-free. Soon porn started featuring mainly hair-free women, so more and more men grew up thinking this was normal. Eventually hair removal amongst women became the norm, to the extent that now a woman is considered ugly or unkempt if she doesn't remove her body hair. So the whole thing was just about making money.

[–] DisabledAceSocialist@lemmygrad.ml 11 points 3 weeks ago (2 children)

Some of us would welcome a nuke.

 

Thanks so much for the help I've received on here previously, but I need some more help. I am making a post on mutual aid but sometimes I have to make two or three posts there before getting a response, and sometimes don't get a response at all.

For the infection in my surgical wounds I need 10% povidone iodine solution, like this:

https://www.storkz.com/amazonbasics-195515026321.html?currency=GBP&country=GB&gad_source=1

https://www.ebay.co.uk/itm/296729003742?_skw=betadine+10%25&itmmeta=01JMHH7M8A61K6K6D2WPNVXPQS&itmprp=enc%3AAQAKAAAA0FkggFvd1GGDu0w3yXCmi1cTXE%2BmRk4GVgSEculzC58x9cZSuZXq7XI9kq57z5TSmu7WAr2%2F8XQwzy0HRKsG%2BVqsOPCe9nFf%2BtbFDpN7Z8hFArjpQDLvw%2Fpsb6NC9eunqXczS2v03VbExbf2ImMX80tc%2B8l7UXmEwDf33g4nEkoRE4tdwkIiz5K%2Fx3nCpQ0O7H%2FylzExCiUAe2m%2FLyVvJcBCk%2BGUucvrZ1f9jzw8iXz8ISFbhDPnitUvm4o2elEwXbTlnFlu264pcE07k1%2FHbhE%3D|tkp%3ABk9SR6rEnrGkZQ

https://betadine.com/betadine-products/betadine-antiseptic-solution/#%3A%7E%3Atext=%28povidone-iodine%2C+10%25%29&text=Our+trusted+antiseptic+solution+helps%2Ccuts%2C+scrapes%2C+and+burns.

10% ointment like this:

https://www.ebay.co.uk/itm/286121265009?_skw=10%25+povidone+iodine&itmmeta=01JMHQBRZAS54Z1023EWWKXR6B&itmprp=enc%3AAQAKAAAA8FkggFvd1GGDu0w3yXCmi1etS20HUYiC6M823Ih5MmRdEE%2FssHoz5KdbX3zue0z72d4pDCv%2B%2BfO2K5f08iCDrN6QbY5HIYjWbhZl0UnIRvf5DYii0xs6eYCg1jSJDm%2BUXn52DW3McU6kaRz8GZIve9gRxJogDgb2gsBDqpBExI%2Fs37ucmN8N9sCHEZDofhUHnWI1U7jjlPehrIR5yBCdbtl3aGX0ndEgxpCLPM%2BIGQZGWyUFUY0sduAclOW07JkNqauCkIpowhhJZD%2BepIzKggx0cKlwNHInbyHHf1WsknpX5rUpB4xu9vP%2BnCHuz1eCjw%3D%3D%7Ctkp%3ABk9SR-yPr7ekZQ

https://www.salesatdrmyhill.co.uk/betadine---povidone-iodine-ointment-20g-758-p.asp

I need strong, waterproof shoe covers as I can't wear shoes right now but still need to go to medical appointments:

https://www.amazon.co.uk/Pack-pcs-PREMIUM-overshoes-ASPRO/dp/B078YQTM3X?sbo=RZvfv%2F%2FHxDF%2BO5021pAnSA%3D%3D&sp_csd=d2lkZ2V0TmFtZT1zcF9zZWFyY2hfdGhlbWF0aWM

I also need quite a lot of powder-free nitrile gloves, like this:

https://www.mccormicktools.co.uk/products/ph-bodyguards-gl895-blue-nitrile-powder-free-disposable-gloves?variant=41740133138513

https://www.ebay.co.uk/itm/144733163093?_skw=bodyguards+nitrile+1000&itmmeta=01JMHHT6Q4ZNHNBGPTF56MDF5F&itmprp=enc%3AAQAKAAAA8FkggFvd1GGDu0w3yXCmi1cHxNMsQ0GDCRBaAScC%2B9RwFKkiuhIR5nEP8OsNVz%2B%2B7eW94mwsaYpeRQZtLtKgHg7VZA0MLI8iXT0xr7RKWCzhPlar%2F5IzZ4%2BtFShMMdKd1QWIvApjsGUQjDFX9o78JZFVVId9SByqdktT7rYensjNCg8TrqLOIDlVujvus5xAAqql%2BzBktjC1zJSIfKADlLw3hUov0uW5XXOoqq7xnor2NWcIbghck%2Bsr9cQ%2B3yC2lT2jF%2BCUf7SmqRSm0%2BfVPU%2FJB%2F3oQ2NZ9%2FjRyvbJ0%2FJvE%2FjVHvwSiJ%2FkqLo%2BIVefkA%3D%3D|tkp%3ABFBM6OvosaRl&var=443958739103

Would anyone be willing to order these items and send them to me? As mentioned in previous posts, I would prefer not to accept money if at all possible because of the DWP checking claimant's bank accounts, and I can't afford to buy things myself until I get my benefit claim sorted out. I need these items quite urgently. I need as large a quantity as possible, as my surgical wounds keep getting infected and I have another surgery scheduled for 24th April, so I'll be going through all this again, for months.

[–] DisabledAceSocialist@lemmygrad.ml 5 points 4 weeks ago (1 children)

If they won't write letters for your claim, can't you try telling them something like: Since you won't help me go on disability and I can't afford to survive without a source of income, you are leaving me no choice but to stop taking the medication so I can keep on working?

Oh sorry to hear that. Do you have anyone who can accompany you?

This bit " Are we doing everything to make sure people in the city know how to access this critical care?" particularly pisses me off. He's implying that it's the family's own fault that this happened, that there is all the help needed out there, the family just didn't access it. Never mind that they'd asked the authorities for help twice and didn't receive any.

It reminds me of in the UK whenever a disabled person has their benefits stopped and starves to death, the news reports are always full of victim blaming, saying that there's so much help out there, the disabled person just didn't access it. When, actually I know from experience, there is nowhere enough help and whatever authorities you contact just refer you back and forth to each other.

It seems most countries just have the appearance of help in place so that people who are doing alright can sleep at night, imagining that there is help available for the less fortunate, when there really isn't.

It's absolutely falling apart. Then again, the whole country is.

 

This is mental, and infuriating.

I had a stroke during covid, which has caused problems with walking, balance and co ordination. Even basic things like dressing myself are more difficult now. The rehabilitation and physiotherapy parts of my local hospital were shut down because of covid, so my treatment was delayed.

Eventually, I started physiotherapy but by then the damage had been done. It hasn't helped at all. After a while, the physios realised it wasn't going to help, and said I should have been referred to the neuro physiotherapists all along. So I spent several years getting inadequate treatment (and this inadequate treatment also started late because of covid).

They finally referred me to the neurophysios, and I've been on that waiting list for about a year. Yesterday I got a letter from them. Paraphrasing, but it basically said:

You've been referred to us. If you still want treatment, call this number within 2 weeks or you'll be removed from our list.

The letter was dated 30th December. Now I don't know if they'll make an exception or if it's too late and I have to be put to the back of the waiting list again. This is what it's like for a stroke patient trying to get basic treatment. And the government wonders why so many people are too disabled to work.

😡

[–] DisabledAceSocialist@lemmygrad.ml 10 points 1 month ago (2 children)

Sorry to hear that. I'm in a similar situation. But we are here for you and you can have us as your social outlet. Are you able to walk outside at all?

[–] DisabledAceSocialist@lemmygrad.ml 9 points 1 month ago (1 children)

For example he recommended a nausea medication but I looked into it and you shouldn’t take it for more than 5 days because it can cause irreversible motor damage lmao.

This, unfortunately, is what it is to be on meds. You take one for your medical condition, but that one causes side effects, so you take another med to deal with the side effects. Then that med causes side effects, so you take another to deal with those side effects. Before you know it you're on so many meds you need help keeping track of them. It's a ridiculous way to live. And the doctors don't care because it isn't them living like this.

[–] DisabledAceSocialist@lemmygrad.ml 3 points 1 month ago (1 children)

There are very few professions I have less respect for than the medical profession. It took them three and a half years to diagnose my cancer because they refused to do any tests. They said I was "too young for it to be anything serious." They accused me of being a hypochondriac, suggested I must be depressed, or have chronic fatigue syndrome. Anything other than do their jobs and find out what was wrong. I suffered immensely that entire time, so badly I tried to commit suicide. And then they treated me like an attention seeker. Now they know I'm seriously ill and disabled but still very few of them do what they can to help me keep a roof over my head, or stay fed. Truly awful people.

[–] DisabledAceSocialist@lemmygrad.ml 9 points 1 month ago (3 children)

I'm probably the comrade who advised you that would happen. Yep, this happens to me, every time. Only the GP and mental health practitioners will write sicknotes and letters for benefit claims. None of the others I see - endocrinologist, neurologist, oncologist, stroke clinic, will do it. They all say "That's not our job, we don't do that."

Once, after much pleading, I managed to persuade the physiotherapist to write one for me. But he didn't want to do it, and made sure the note he wrote was useless.

My evil ex-therapist, who I've written about before - wrote me a good letter for my benefit appeal. But then months later when I no longer wanted to attend her sessions she got angry (I'm assuming because she doesn't get paid for the sessions I don't attend) and said she would inform the benefits people that I haven't been going to the sessions (because my attendance at her sessions, plus the letter she wrote, would help me win my appeal). I pointed out that I already have to beg for food while I wait for the outcome of my appeal, and if I lose the appeal altogether, then I'll have no hope. I'll become homeless, and commit suicide. She did not care at all. She said "if that happens, I'll give you a phone number for a homeless shelter."

I'm a partially sighted cancer and stroke patient undergoing months of multiple foot surgeries. It's the middle of a very cold winter and I can't wear shoes. Can you imagine being homeless and probably moved around from shelter to shelter - if they even have any beds available - carrying my belongings from place to place in this condition? She did not care at all. it didn't affect her so she didn't care what happened to me. Just like she didn't care that i can't afford food now, and when I told her about this site and how people donate food vouchers to me, she was appalled and contemptuous about me begging strangers for food and told me to "Stop doing that." OK I'll just starve then.

These medical professionals do not care about us. They only care about their paycheque. It would take them 5 minutes to type and print a quick note about our conditions, and that would make it easier for us to stay fed and housed. But no, they are too mighty and important to concern themselves with the homelessness and starvation of the proles. Most of these specialists earn around £100K, or even more, a year. Live in nice houses, have foreign holidays, send their kids to private school. What do they care if you or I are on the street or in a homeless shelter, hungry and freezing? It doesn't affect them.

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