We can be your online support group. But what proof do you need to give the doctor? Do they need to meet your friends/see photos of you with them? Or is just telling the doctor about them enough?
DisabledAceSocialist
OK thanks. I'll send it as it is.
Which country are you in? In my experience, (in the UK) specialists like haematologists refuse to get involved in benefit claims, they say it's your GP's responsibility to deal with that. But maybe it's different where you are.
Oh, I forgot. Should I mention that the reason I'm writing this in a letter is because it's impossible to get a GP appointment now (the receptionist always turns me away, sometimes saying they have no appointments, or trying to fob me off by telling me to go and see a chemist for a prescription instead. You can now only get practise nurse appointments.) Or would that seem too complaining/combative/passive aggressive?
Oh yeah, I definitely need to give it a read through first, thanks. I think I'll drop it off on Thursday since I have to go there for a dressing change. Thanks so much for all your help, I really appreciate it. I will let you know if I get a response this time.
So sorry this happened to you. IME finally accepting that you're disabled for life and that you can't do the things you used to any more, isn't the hard part. The hard part is how society treats you for being disabled, unemployed, a burden to society, etc. What country are you in? Some of us here might be able to give you tips and support with the disability benefit process and whatever other help you might need.
Dear Dr R,
I have noticed that lately I have been prescribed only half the amount of Dermol 500 cream and e45 eczema repair cream I used to receive. I was previously prescribed two bottles of each a month but now receive only one. I would like to ask that my future prescriptions are for two bottles each rather than just one. I need to use Dermol 500 as a soap substitute daily over my entire body, followed by e45 eczema repair cream as a mosituriser and one bottle simply doesn’t last for a month. Prior to being prescribed these items, I was using ordinary soaps and body washes, and it aggravated my eczema to the point that I had open sores that regularly got infected. This resulted in frequent trips to both hospital and the GP surgery and regular treatment with both antibiotic tablets and topical antibiotics. Since switching to these items, the eczema has remained in remission and I have not had any skin infections from it nor needed antibiotic treatment for it.
I have also previously written to the surgery about my rimegapant prescription, but they have not responded. Previously I was taking rizatriptan for migraines, but since I had a stroke, the neurologist prescribed rimegapant because rizatriptan is contraindicated in stroke patients. I have tried all the other migraine treatments including nerve blocking injections in my head, none of which worked. Rimegapant, along with topiramate, are now the only things I can take that give any relief, and rimegapant can be taken daily as a preventative. The GP won’t prescribe more than 8 tablets per month, which is insufficient for use as a daily preventative. Migraine with aura, which I suffer from, doubles the risk of stroke, and as I have had one stroke already I would like to do everything possible to prevent another. The neurologist originally prescribed 8 tablets for me to try to see if they worked, but said I can increase them to daily if they help. They do work for me by ending a migraine, but as I don’t receive enough to take daily I still get migraines. Would you please therefore increase the number of rimegapant tablets I am prescribed?
I also previously wrote to the surgery about my topiramate prescription but have not received they have not responded. I received a letter saying that all female patients taking this medication must take birth control too, as topiramate can cause birth defects. However, I am not sexually active nor have any intentions to be, and I also appear to be going through the menopause. I do not need birth control and am unwilling to take it under any circumstances. I acknowledge the risks to the hypothetical unborn child that the NHS is prioritising above me. Please confirm that I will continue to receive my topiramate prescription.
Thanks for the advice, I will rewrite and repost tomorrow. The risks to the hypothetical baby are a doubled risk of autism and ADHD. It seems mad to me to make me suffer without migraine meds, or force me to take an unwanted drug, so that a baby who will never be conceived won't have ADHD. I'm not sure how to phrase that though.
I'm biologically female, and I've had the same issue. I once had an elderly male acquaintance start loudly discussing my sexuality in a crowded cafe, announcing to the room that I must be a lesbian since I didn't have a romantic partner. He went on and on about it until everyone in the cafe was looking at me and laughing.
Thanks. if you're getting extra symptoms like aura, then it's migraine you're having. You can even get a migraine without a headache at all, sometimes I just get the aura without the pain. You might want to see if you can try something like rizatriptan or rimegapant, as I believe taking opiates can make headaches and migraines worse if used too much.
Thank you for the offer but I'm on so many meds already with so many side effects i don't want to take another one. It's one of the reasons I don't want to be put on birth control.
So just mention a few friends on here and just don't mention they're online.