DisabledAceSocialist

joined 6 months ago
[–] DisabledAceSocialist@lemmygrad.ml 2 points 1 month ago (3 children)

Thank you for the offer but I'm on so many meds already with so many side effects i don't want to take another one. It's one of the reasons I don't want to be put on birth control.

[–] DisabledAceSocialist@lemmygrad.ml 5 points 1 month ago (14 children)

How about something like:

Dear Dr R,

I have noticed that lately I have been prescribed only half the amount of Dermol 500 cream and e45 eczema repair cream I used to receive. I was previously prescribed two bottles of each a month but now receive only one. I am unsure whether this is an oversight or intentional. I would like to ask that my future prescriptions are for two bottles each rather than just one. I need to use Dermol 500 as a soap substitute daily over my entire body, followed by e45 eczema repair cream as a mosituriser and one bottle simply doesn't last for a month. Prior to being prescribed these items, I was using ordinary soaps and body washes, and it aggravated my eczema to the point that I had open sores that regularly got infected. This resulted in frequent trips to both hospital and the GP surgery and regular treatment with both antibiotic tablets and antibiotic creams. Since switching to these items, the eczema has remained in remission and I have not had any skin infections from it nor needed antibiotic treatment for it.

I have also previously written to the surgery about my rimegapant prescription, but have received no response. Previously I was taking rizatriptan for migraines, but since I had a stroke, the neurologist prescribed rimegapant because, rizatriptan is contraindicated in stroke patients. I have tried all the other migraine treatments including nerve blocking injections in my head, none of which worked. Rimegapant, along with topiramate, are now the only things I can take that give any relief, and rimegapant can be taken daily as a preventative. However as the GP surgery won't prescribe more than 8 tablets a month, I am unable to take it daily as a preventative, and so still suffer migraines. Migraine with aura, which I suffer from, doubles the risk of stroke, and as I have had one stroke already I would like to do everything possible to prevent another. The neurologist originally prescribed 8 tablets for me to try to see if they worked, but said I can increase them to daily if they help. They do usually work for me by ending a migraine, but as I don't receive enough to take daily I still get migraines. Would you please therefore increase the number of rimegapant tablets I am prescribed?

I also previously wrote to the surgery about my topiramate prescription but have not received any response. I received a letter saying that all female patients taking this medication must take birth control too, as topiramate can cause birth defects. However, I am not sexually active nor have any intentions to be, and I also appear to be going through the menopause. I do not need birth control and am unwilling to take it under any circumstances. Please confirm that i will continue to receive my topiramate prescription.

OK thanks. I'll try writing up the draft tomorrow with only discussion about my health outcomes.

He knows I don't have any income at the moment, but thanks for the idea, I'll keep it in mind and maybe use this if my benefits get sorted.

[–] DisabledAceSocialist@lemmygrad.ml 5 points 1 month ago (17 children)

Oh, these are good ideas, thanks! I didn't even think of doing this. I will start working on a draft and try to post what I have tomorrow.

I don't think I can use my foot surgery as a reason in this way though. I currently have to wear "LimbO boots," in the shower, waterproof foot coverings as I have to keep my surgical dressings dry. So lack of a shower wouldn't harm my surgical sites. What the lack of the soap substitute does, is mean that I have to use normal soap, which flares the eczema up badly again and then it gets infected again. Then I have to either go to hospital or be prescribed antibiotic creams.

But yes, writing about how lack of migraine meds and eczema cream will adversely affect me is good. I've been admitted to hospital many times when my eczema gets very badly infected. I was going to use the cost of this as a reason why they should keep prescribing me the cream - it must be expensive for the NHS to keep admitting someone to hospital - what do you think?

The cost is the argumentative lever they are using to degrade your supplies and you don’t want to give it any merit in your appeal.

I don't have any real proof that this is why they're doing it though. The pharmacist did complain that my migraine tablets are very expensive, but the actual GP hasn't said anything about that. He just started giving me prescriptions for half the usual amount of eczema cream/soap substitute without a word about why, and has simply ignored my previous request for him to prescribe a full months worth of migraine tablets instead of the 8 a month he prescribes now.

We live in the dystopian timeline. It is getting more and more impossible for people around the world to get their basic needs met, while the rich get richer. It's getting more like Ready Player One by the day, where a few trillionaires own everything and everyone else is in absolutely miserable, hopeless poverty. And it's crazy that so many powerful Americans call themselves pro-life, the same Americans in charge who let people die due to corporate greed.

 

Errol Graham was a disabled man in the UK. The DWP (benefit nazis) wrongly stopped his disability payments. Unable to buy food, he starved to death. The DWP then spent £1 million trying to cover up their part in his death, and the other deaths and torment they have caused people.

When a disabled person is getting a few thousand pounds a year to live on, the DWP will do anything they can to stop the payments. It's considered a huge financial burden for the country to pay a disabled person's living expenses. But they have a million pounds to blow to cover up their misdeeds!

It just rams home to me what a position I'd be in if it wasn't for the help I've received on here. Over the past few months several people have sent me food vouchers and other basic necessities and if it wasn't for you, I genuinely fear I would end up starving to death too. The food banks are difficult and time consuming to access and this country makes it as difficult as possible to access help.

Articles like this just show me how little my life is valued. Most people don't want my living expenses being paid. Even though there is millions of pounds always available to spend on things like this.

So thank you to the people on here who've helped me so i don't have to end up like Errol Graham.

 

economy."

 

I've just had my local pharmacist shame me for being a drain on NHS resources. I take various different meds, some for my cancer treatment but most for dealing with side-effects caused by the cancer treatment. Some to prevent me from having another stroke. One of the issues I've been dealing with is severe migraines, with blindness, vomiting and excruciating pain lasting up to three days at a time. I've had various different treatments for this, including nerve blocking injections in my head, but the only medication that really helped was rizatriptan.

However, rizatriptan isn't suitable for people who've had strokes, so they won't prescribe it any more. So it was back to the neurologist, trying various different treatments and meds until I was, a few months ago, prescribed rimegepant. This is nowhere near as good as rizatriptan, but it does help. So for the past couple of months I've been having this and I just went to get my most recent prescription filled.

The neurologist said I can take one every day as a preventative but the GP's surgery have been refusing to prescribe me more than 8 a month. They wouldn't say why, but today when I went to collect my prescription, the pharmacist had a go at me about the cost of the medication. I was literally just standing there waiting for it, and totally unprovoked he came out, handed me the bag and just started loudly complaining in front of all the other people about how this medication is too expensive, and his general tone and demeanour clearly said that I'm being a selfish drain on NHS resources, although he didn't dare actually say that in words.

I got home and googled the cost, it's £12 per tablet. Logically I know it's not my fault I need meds, but I just feel really ashamed and guilty now for being prescribed this. Maybe this explains why the GP surgery won't prescribe me one as a preventative each day. I'm wondering whether I should even bother to keep getting this prescription filled if the people at the pharmacy think so badly of me for taking it.

This isn't even the first time the NHS has complained about the cost of my meds. Some years ago, before my stroke when I was still taking rizatriptan, they tried to change me to a cheaper med, one I'd already tried that didn't work, saying rizatriptan was too expensive. (It's like £2 a tablet). I begged the woman not to change it and when she said she was changing it, I broke down in tears at the thought of going back to 3 day long torturous migraines. She actually laughed and told me to stop being dramatic, but in the end after getting advice on how to deal with her from people online, she agreed not to change it.

It's the same with receiving disability benefits, having to go through endless assessments and appeals, being given zero points and having my payments stopped, being left hungry and destitute. Again and again, this society shows me that i am nothing but an unwanted drain on resources, selfishly sponging off working people. Yet, they won't let me have a peaceful and painless exit. If assisted suicide was legal and free on the NHS, I would take it. They would save money then. But no, I can't access that service. They even make DIY suicide difficult by making the easier methods illegal and difficult to obtain. Just - what do they want? They don't want me dead but they don't want me alive either. I have two risk factors for stroke - my cancer treatment and my migraines, and I've already had one stroke at a young age. They tell me I'm at risk of another. Keeping my migraines to a minimum makes the chance of another stroke less likely and if I do have another it could be more severe and more life changing if I keep having uncontrollable migraines. Then they'll have to spend even more money on me.

Sorry just a rant because I'm feeling like worthless trash after my trip to the pharmacist. Just legalise assisted suicide and kill me already. But this society are cowards. They don't want to say "Yes, let's kill you as you're disabled," because they don't want to sound like nazis. So instead they slowly kill us by denying our benefit claims, leaving us homeless and hungry, changing our meds to cheaper ones that don't work and whatever else they can think of to get rid of us without making it look like societal murder.

 

I did ask on mutual aid on hexbear twice but got no responses.

I'm going through a disability benefit appeal. I've got absolutely no money whatsoever, my overdraft is maxxed out and I'm 5 months in rent arrears, no family to help and the food bank is so difficult and time consuming to access. You get three days worth of food but it takes over a week to access. So every week there's 4 or more days of starvation. Anyway I am absolutely starving. The problem is, I don't dare ask for money in case I get in trouble with the DWP (British benefit nazis) for having a source of income. So would anyone please be able to help me out with food some other way than money? British supermarket gift cards (eg for sainsburys/tesco/asda), a justeat voucher, an amazon voucher so I can order food from amazon pantry, I mean anything at all that isn't actual money? I am so desperate I don't know what to do. I know sainsburys take google pay for giftcards. You don't have to be in the UK to order them.

[–] DisabledAceSocialist@lemmygrad.ml 0 points 6 months ago (1 children)

I love reading. My favourite series include the Earth's Children series by Jean Auel, Outlander by Diana Gabaldon and the Haunted Liverpool series by Tom Slemen.

 

I don't have a penny, the next food bank appointment is 30th Sept. I don't know how I'll last that long. Any faster ways?

 

Hi, I just discovered this site. I'm hoping to make some friends. I'm stuck at home and lonely. So I'll tell you a bit about myself. I'm cis female, ace. I've been having cancer treatment for quite a while and recently had a stroke. I'm going through a disability benefit appeal. All my friends drifted away when I got sick as I was no longer fun. The last time i saw my friends was at my 25th birthday party. I'm turning 41 this year. I've had no social life or offline companionship since then. I worked several jobs including fitness instructor and carer for the elderly, then went to university in my 20s to study philosophy. I had to drop out due to the side effects of my cancer meds.

My life now revolves around endless benefit assessments, last one I was awarded zero points and had my money stopped. I'm currently fighting it but now have no money at all and a maxxed out overdraft. Food bank access is awful so I'm starving constantly. I've been learning to walk again since the stroke. Previously I was sporty but now it's painful to even walk. So I wanted to take up art as a hobby, start learning to draw from scratch but I can't even afford paper and pencils.

So, life is awful. I need a distraction and someone to talk to. I used to talk to the people on a suicide pact forum (I've already made on attempt and often feel desperate enough to try again) but I just got banned from there for trying to sell my meds on there. Don't judge me please - I was only trying to do that out of financial desperation! So now I have literally no-one to talk to online or in real life.

Obviously I'm a leftist. I'm sick of this world where some people are billionaires while millions starve.

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