90
What are the risks of sharing DNA?
(lemmy.ml)
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
this post was submitted on 01 Apr 2024
90 points (96.9% liked)
Privacy
31992 readers
440 users here now
A place to discuss privacy and freedom in the digital world.
Privacy has become a very important issue in modern society, with companies and governments constantly abusing their power, more and more people are waking up to the importance of digital privacy.
In this community everyone is welcome to post links and discuss topics related to privacy.
Some Rules
- Posting a link to a website containing tracking isn't great, if contents of the website are behind a paywall maybe copy them into the post
- Don't promote proprietary software
- Try to keep things on topic
- If you have a question, please try searching for previous discussions, maybe it has already been answered
- Reposts are fine, but should have at least a couple of weeks in between so that the post can reach a new audience
- Be nice :)
Related communities
Chat rooms
-
[Matrix/Element]Dead
much thanks to @gary_host_laptop for the logo design :)
founded 5 years ago
MODERATORS
In the US, insurance companies cannot discriminate based on your genetic data, contrary to what many people in the comments are saying.
https://www.hhs.gov/hipaa/for-professionals/special-topics/genetic-information/index.html
For now. The US is a victim of legislative capture by corporations and it's possible that in the future lobbying by insurance companies will open the door to them using some of that data.
They're spending a lot of money lobbying inside the Beltway to change that. So far it hasn't worked but it's only a matter of time.
Or what? A slap on the wrist?
“The penalties for noncompliance with GINA range from $300,000 per incident when noncompliance is intentional and a minimum of $2500 to a maximum of $500,000, where noncompliance with the law is unintentional.”
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3627538/#R1
It's good that you were able to quote the regulations. You're not wrong, I'm just apathetic; the question was more rhetorical. To be clear: I don't have faith that this is strong enough to deter and/or that governing policies have enough teeth to enforce. I'd like to be wrong, but I'm not hopeful.
in terms of corporate expenses for legal penalties that's barely a disinterested-grunt-from-parent-in-other-room, let alone a wrist slap
It just comes down to est. profit margin vs. risk and not some ethics about lawfulnes. If they think they can eat the fines/lawsuits then they're going to take higher profits until the hammer drops. Especially if it shows short term gains for a publicly traded company.
That said, genetic data is probably not the biggest indicator of how much an individual will cost an insurance retailer (behavior would be better) and i'm not about to sift through HIPPA law to see all that it covers.
My bias here is based insurance company behavior from back when they could descriminate based on pre-existing conditions as well as how any publicly traded company eventually functions. Etc...
That’s just for health insurance though, not life insurance