157
submitted 8 months ago* (last edited 8 months ago) by FlyingSquid@lemmy.world to c/casualconversation@lemmy.world

Before I begin- Again, please no medical advice or suggestions. I am going to the Mayo Clinic in March and I will get their advice and I am just going to ignore any medical advice posted, sorry. Please no pity party either, I'm just angry and need a a place to rant and vent, that's it. Feel free to ignore this post and move on.

So... starting in about January of 2023, I started dry heaving almost every morning and this has happened ever since. Nothing has ever come up. Within five minutes of getting up in the morning, I dry heave. Sometimes once, but sometimes a few times.

In March, I stopped eating for six weeks. It's not like I'm too nauseated to eat or I feel too full to eat, I just do not want to eat. Period. I've explained it to others like this- would you be able to eat a turd? No. That's how all solid food feels like to me. I can't even force myself. It's a total aversion to food. Even the smells of food can trigger it, especially savory smells like onions, cooked meat or cheese (meaning I hide in my office in the garage when my wife and daughter have pizza). My current doctor has described it as anorexia but with a physical cause.

I went to urgent care, they told me to go to the ER because they couldn't give me the diagnostics I would need. I went to the ER. They gave me X-rays, they took labs, and they did a couple of other tests I can't remember now and sent it all to my doctor (who I've since gotten rid of because she was worthless). She told me there were no results, but to be sure I also needed a CT scan, and my insurance wouldn't let me go to a private facility, so my only option to get it quickly was to go back to the ER the next day and get one. Incidentally, the first day was an 8-hour visit and the second day was a 6-hour visit. Hooray American healthcare system.

I got prescribed various anti-nausea medications, which were of no help because I had no nausea. I ended up living on Ensure and Gatorade.

Anyway, by mid-April, I was eating again. It just suddenly happened. I felt like eating, ate some crackers, and I was fine with an appetite again. I still heaved every day, but I was fine.

I also had to do a colonoscopy the next month, and just to be sure, I scheduled an EGD where they check your stomach as well. They found an ulcer. Finally, an answer! Nope. They did another EGD six weeks later, the ulcer was gone and I was still heaving.

No one knew what was wrong, of course, but it seemed less urgent. I scheduled a bunch of tests and, since this is the U.S., they were scheduled for months later and the summer started.

Then, in August, on the morning of August 20th, it all changed. I got up, ate some cereal, and that was the last thing I ever ate so far.

Back to the doctors it was! This time, I got a head MRI in case it was neurological, as I do have a rare nerve disorder as well (trigeminal neuralgia) because I won the fucking genetic lottery. Nope, MRI showed nothing. My neurologist actually said my brain was the most healthy she'd seen in a while. So that didn't work.

I couldn't keep taking time off of work, so I took FMLA, a law that allows you to take up to 12 weeks off, unpaid, for health reasons and have a guaranteed job you could come back to. It is actually paid for bigger companies, but if a company has under 50 employees, which mine did, no pay.

12 weeks went by and I just had to end up quitting. What else could I do? I was glad because I hated that job and I was able to put my very bullied daughter into online school and supervise her, so there were good sides, but we're down to a single income now with ever-mounting medical debt despite having "good" insurance.

Anyway, back to the medical situation! I had a HIDA scan. That tests for gallbladder issues. The HIDA scan suggested that might be a problem. So, again, hey, a solution! I had my gallbladder out just before Christmas. It's a simple surgery and you can recover from it with almost no trouble because the gallbladder can be removed like the appendix. I was hoping I'd wake up hungry. No such luck and my gallbladder was healthy.

At this point, most of the doctors basically threw up their hands and said they didn't know what to do and I applied to go to the Mayo Clinic. For those of you unfamiliar, it's one of the best hospitals in the country and it specializes in cases no one can figure out. Sort of a real-life House situation except with lots of doctors instead of one asshole. They accepted me and I go on March 22nd. I was going to have to do a GoFundMe for the trip, but my 81-year-old mother, who is relatively well-off, said she would go with me to be an advocate and take notes and also pay for an AirBnB. I don't really want to drive 8 hours up to Minnesota with a semi-crazy old lady, but at least I'm saving money.

Obviously, it's been very hard on my family. On top of general worrying about me, I can't go out to eat with my wife and daughter because I'm concerned I won't be able to handle a restaurant's smell. I can't even get them fast food. My daughter wanted a meatball sub and I had to tell her I couldn't get it for her because I couldn't handle going inside and I couldn't handle the smell as she drove it home (my wife got it for her later, but I hate telling her I can't get her food). On top of that, I have to request they turn the kitchen fan on when they eat or I won't be able to come back into the house. I usually go to my mother-in-laws' house on Christmas, but I couldn't because there would be a whole bunch of food there.

I wish I could eat. So badly. For so many reasons. I keep seeing food ads and think of how good it would be to have them (in an abstract sense, I wouldn't be able to eat them if they were in front of me). A Nepali restaurant opened in town. I have never had Nepali food, but I love Indian food and I love Tibetan food and Nepal is between them. I drive by it all the time wishing I could have just a tiny bit.

The weirdest part? I feel fine almost all the time. I have very little energy obviously (I do try to exercise), and there's the heaving part, but I don't really feel sick most of the time. Also, I can brag that for the first time in my life I'm just 5 pounds above my BMI ideal weight of 180 pounds. Before I got sick, I weighed 260 pounds. Also, I don't have high cholesterol or high blood pressure anymore, so I guess there's a silver lining? Buying a whole bunch of new pants because none of the old ones fit anymore kind of sucked though.

Anyway, that's my story. It's six months since I've eaten today. My "diet" consists of- Tea in the morning, Ensure four times a day for the nutrition, Gatorade twice a day for the electrolytes, V8 twice a day for the fiber (I have to drink it while holding my nose), and as a treat, either root beer at home or a chai latte out somewhere. Also, I might have gotten the order of things wrong, sorry. There's been so much that I've had to go through.

Six months. I'm going to celebrate by not eating some cake.

Edit: Hooray having a terrible memory too, my mother reminded me this morning that I go on March 26th.

top 50 comments
sorted by: hot top controversial new old
[-] Shadow@lemmy.ca 41 points 8 months ago

As someone who also struggled for years with unknown health issues related to food, I wish you the best and hope you manage to find some answers

[-] FlyingSquid@lemmy.world 17 points 8 months ago

Thank you. It sounds like you did find answers and I'm glad to hear it.

[-] Shadow@lemmy.ca 24 points 8 months ago

I found 75% of my answer, I suspect there's still something else. Someone casually mentioned histamine intolerance to me and I had a "holy shit" moment after reading the signs & symptoms. The Wikipedia page didn't even exist until 7 years after I started trying to figure it out, all I knew is I got migraines all the time and just generally felt like crap.

It's amazing how little we know about the human body still.

[-] Che_Donkey@lemmy.ml 18 points 8 months ago

I know this!

We had a student when I was at a university who could only eat 5 things on this planet because of his histamine allergy: zucchini, plain white steamed rice, unseasoned chicken breast (and I forget the other 2) but after a couple years he was able to add a couple more things to his diet- each item was celebrated by the staff.

Grest kid, extremely positive about his condition, and usually in a good mood!

I hope you find some answers soon OP.

[-] FlyingSquid@lemmy.world 14 points 8 months ago

I knew someone allergic to corn. Which is not only in tons of processed foods, but also used in things like building insulation. She was WFH years before that became a thing because she got special dispensation.

load more comments (1 replies)
[-] FlyingSquid@lemmy.world 10 points 8 months ago

That sucks, but I'm glad you found at least a part of the answer. Migraines are awful. The nerve disorder I mention is kind of similar to migraines and it's initially what they thought was the problem with that (that also took ages to figure out), so I absolutely sympathize.

load more comments (3 replies)
[-] thefartographer@lemm.ee 36 points 8 months ago

Good job getting an appointment with Mayo Clinic! I know this has been really tough for you and I hope you get some good answers. I also look forward to hearing about your progress.

I'd also like to take a moment to appreciate the fact that you're going to the Mayo Clinic for your issues with food. If the universe is paying attention, you'll hopefully somehow cross paths with Dr. Burger or Dr. Ham.

[-] FlyingSquid@lemmy.world 21 points 8 months ago

That's great! We had a Dr. Slaughter and a Dr. Nice at the hospital in the town where I grew up. There was also an allergist named Dr. Ruff. Dr. Ruff was really, really nice as was Dr. Slaughter. Dr. Nice was not all that nice.

There was also an optometrist named Steven I. Ball.

[-] spittingimage@lemmy.world 7 points 8 months ago

Was Dr Slaughter a paediatrician? If so, we may have the same home town. There was also a Dr Blood (oncologist) and Dr Bones (psychologist).

[-] FlyingSquid@lemmy.world 11 points 8 months ago

I only saw him in the ER, but he might have done pediatrics. I don't mind telling people where I grew up, it's not really doxxing myself. Bloomington, Indiana.

[-] spittingimage@lemmy.world 11 points 8 months ago

That means there's two Dr Slaughters. I'm in Auckland, New Zealand.

[-] FlyingSquid@lemmy.world 15 points 8 months ago

I guess the Slaughter family is spread out across the world but maintains an interest in medicine.

load more comments (5 replies)
[-] Blackout@kbin.social 32 points 8 months ago

My professional medical advice as a medicinal professional is to hey hey hey hey smoke weed every day

[-] flyboy_146@lemmy.world 13 points 8 months ago

As someone with a medical cannabis prescription for chronic pain, and absolutely no medical background, I fully agree!

load more comments (2 replies)
[-] ProdigalFrog@slrpnk.net 31 points 8 months ago

I've seen you all around lemmy, and always enjoyed your takes on things. It's crazy to learn that you've been going through all that all the while. I hope things get better for you, man!

[-] FlyingSquid@lemmy.world 19 points 8 months ago

Thanks, I appreciate it!

[-] afox@lemmy.world 27 points 8 months ago

Been fighting a dying pancreas since 2016. Dropped from 212 to 120lbs. My body doesn't Absorb the food I injest. Pancreas dumps awful amounts of acid into my stomach. I throw up almost daily sometimes up to a dozen times. I take very expensive pig enzymes to compensate for my body not absorbing food. It's an absolute mess. I feel your pain. At 40 I'm feeling pretty bleak. Hang in there. Pancreatitis is a terrible thing. Especially chronic

[-] FlyingSquid@lemmy.world 17 points 8 months ago

I'm really sorry to hear that. I'm 46, so I definitely understand the bleakness at this age. My grandmother died of pancreatic cancer and died in agony. I'm not sure how similar that is, but clearly getting diseases of the pancreas is pretty awful.

Is a transplant a possibility?

[-] afox@lemmy.world 6 points 8 months ago

Probably not here for me in America (F yeah!). I've been hospitalized with multiple over night stays like 18 times or so since it started. They took my gallbladder for good measure... it was fine... should have left it. Lets throw paint at a wall and see if it sticks! I'm fine. People deal with way worse. I just hope you and yours are as good as you can be.

load more comments (1 replies)
[-] elxeno@lemm.ee 21 points 8 months ago

I keep seeing food ads and think of how good it would be to have them (in an abstract sense, I wouldn't be able to eat them if they were in front of me).

food

Good Luck on the clinic!

load more comments (1 replies)
[-] Dantalion@lemmy.world 21 points 8 months ago

I knew someone who went over a year without solid food. They have only recently started introducing solid foods, which is slow and very controlled.

They were diagnosed with Avoidant Restrictive Food Intake Disorder (ARFID). It caused them, through this eating disorder, to struggle to engage with solid food.

Of course I'm not saying this is what it is (I'm not professional!), and I wish you the best in your journey. What I want you to know is there is so many good professionals out there, as well as liquid based foods that act as supplements in the meantime. Be the best you can be and enjoy life as much as possible as you conquer it.

All the best

[-] FlyingSquid@lemmy.world 8 points 8 months ago

Thanks very much. Who knows, it very well could be that. I just hope it gets sorted out at Mayo.

load more comments (2 replies)
[-] jws_shadotak@sh.itjust.works 20 points 8 months ago

Maybe you should try getting COVID so you can lose your sense of smell lol.

That's really a bummer but also a super interesting case. Can't wait to hear about Flying Squid disease in a medical journal someday lol

[-] FlyingSquid@lemmy.world 18 points 8 months ago

I got COVID in between bouts of not eating, so that was fun too. Good news? Most of the symptoms only lasted about 3 days. The bad news? At the end of that 3 days, I dry heaved like 20 times in a row. My wife was terrified. And then I felt fine again. 🤷‍♂️

[-] Hyperreality@kbin.social 7 points 8 months ago* (last edited 8 months ago)

There's also this side effect of covid called parosmia, where everything tastes/smells rancid:

https://www.mainepublic.org/health/2021-08-19/parosmia-the-perplexing-long-covid-19-condition-that-can-make-food-taste-and-smell-rancid

Honestly, stuff like that is incredibly frustrating. We take eating, drinking, breathing, pissing and shitting for granted. So when when suddenly you can't, it's scary.

load more comments (1 replies)
[-] LopensLeftArm@sh.itjust.works 16 points 8 months ago

Damn dude that sucks! I hope they can figure out what's going on with you and get you sorted, that sounds like a pain!

[-] FlyingSquid@lemmy.world 14 points 8 months ago* (last edited 8 months ago)

Thanks. It is a pain. But like I said, I feel fine most of the time so most of the pain is psychological- wishing I could eat stuff I see that looks good (or even not that good, my daughter got Peeps for Easter and I thought "I'd eat a Peep or five.") and not knowing what's wrong.

Obviously, that's not nothing, but at least I'm not in physical agony or anything. And my family has been very supportive.

[-] Monument@lemmy.sdf.org 14 points 8 months ago

Well, I hope your cake looks really delicious!
And that the Mayonnaise clinic helps you out.

load more comments (1 replies)
[-] assassin_aragorn@lemmy.world 12 points 8 months ago

I hope the Mayo Clinic can help you out dude. I always enjoy chatting with you on here and reading your takes.

load more comments (1 replies)
[-] cheesymoonshadow 11 points 8 months ago

Maybe look into Soylent drinks. It's nutritionally complete, as in you could just drink that and not supplement with Gatorade or V8, and it comes in different flavors. You can order from the website or buy at Target and other retailers.

Yes, I know it's a movie about people being recycled for food. The guy who invented it was a software engineer who wanted something easy, simple, and nutritious that he could take for lunch while working, and he thought it would be funny to name it Soylent.

I've been taking the powder and drinks for several years now. Favorite drink flavor is strawberry.

load more comments (11 replies)
[-] ChunkMcHorkle@lemmy.world 11 points 8 months ago* (last edited 6 months ago)
load more comments (1 replies)
[-] ericbomb@lemmy.world 11 points 8 months ago

Do you not know what to say when people compliment your weight loss?

For no reason any doctor could tell my body decided I needed to be in extreme pain whenever I ate solid food.

So I went from 230-130, and people will be like "wow you look great!" And it's just like "thanks! My body has betrayed me and I'm very confused!"

Luckily I got some medication that let's me eat rice and veggies.

Fingers crossed for you! Maybe they'll just evict your stomach!

load more comments (5 replies)
[-] OpenStars@startrek.website 10 points 8 months ago

American healthcare does suck donkey balls, but I am glad that you are able to find a source to get the diagnostic aid that you need.

Knowledge is power, so whatever the cause, if you can find ways to deal with it (like somehow eat food that has no smell? well you already said crackers don't work... but if you can find SOMETHING) then that would be great!

[-] FlyingSquid@lemmy.world 9 points 8 months ago

Thank you. As for finding something as bland as possible, my wife gave me a single piece of cooked spaghetti. I tried really hard to eat it, but I had to spit it out pretty quickly. I ended up in tears because I thought she was blaming me for it as if I wasn't trying hard enough, although she says she didn't (it really felt like she did).

Unfortunately, smell doesn't matter. It's food. I have to chew and swallow it. And even if I have to swallow it without chewing it, like applesauce or yogurt, it's still food. I can't explain it better than that. Ensure is about as thick a liquid as I can handle.

[-] OpenStars@startrek.website 7 points 8 months ago

Fwiw, she was probably just frustrated by "the situation" - like how you wanted to be able to provide food for your daughter, but could not. It's gotta be rough and I hope they can find a fix for it ASAP, even if only in stages and that may take some time as well.

load more comments (3 replies)
[-] BonesOfTheMoon@lemmy.world 8 points 8 months ago

Can I ask a question? Are you on any medication?

[-] FlyingSquid@lemmy.world 8 points 8 months ago

Yes. Three things. All neurological. And if that is the problem, I am seriously fucked.

load more comments (10 replies)
[-] Buddahriffic@lemmy.world 8 points 8 months ago

I know you said no medical advice, but I'm not a doctor, so this is just advice.

Have you tried threatening your other organs? Like tell them you know that one of them is responsible and it's only a matter of time before you figure it out, and they saw what you did to your gall bladder and if they don't sort out their shit soon, they will be next. Tell them your gall bladder is in a mining camp in Siberia, unless Putin sent it to die in Ukraine.

Anyways, hope either this works, that you get over your fear of medical advice before you go to the Mayo Clinic, or that their selection of mayonnaises is enough to kick-start your appetite again.

Best wishes!

By the way, on a more serious note, since you can handle liquids, have you tried smoothies or something a bit heavier that you don't need to chew? Apologies if this has already been addressed, I didn't read much of the comments thread.

load more comments (1 replies)
[-] walden@sub.wetshaving.social 7 points 8 months ago

Good luck!

Just to be pedantic, FMLA is still unpaid at larger companies. Some companies might pay you, but it's not required by law.

load more comments (5 replies)
[-] ivanafterall@kbin.social 7 points 8 months ago

You should be seen by the Mayo Clinic.

Ha! Now you're taking my medical advice.

Just kidding. I'm sorry you're going through that. It sounds nightmarish. I hope Mayo is the ticket!

load more comments (1 replies)
[-] Sekrayray@lemmy.world 7 points 8 months ago

So sorry you’re going through all of this. As an ER provider I feel so terrible for the patients I see with chronic gastrointestinal issues. I always try to do some things to broaden the differential (I’ve had some pretty clutch diagnoses of chronic mesenteric ischemia in cases like yours by doing a CTA instead of just a CT—usually on patients who have had multiple CT’s), but there’s only so much you can do with the resources available to us in the ED. I always place a GI referral, but I feel like most GI’s actually ignore the chronic stuff if scopes are negative. It really sucks knowing a lot of possible answers but not being the person who can test for them.

Hopefully Mayo helps. Almost sounds like you have some sort of GI motility issue—I wonder if your trigemial neuralgia is actually a more nuanced symptom of an underlying CNS/PNS unifying diagnosis.

load more comments (3 replies)
[-] Socsa@sh.itjust.works 6 points 8 months ago

Damn bro maybe you just have a cute lack-of-weedism.

Seriously though hope you feel better. Never stop shitposting.

load more comments (1 replies)
[-] mars@lemmy.blahaj.zone 6 points 8 months ago

I had something similar, but instead it was feeling full and nauseous with just a few bites. Food smells were the worst, and can still trigger nausea for me. I never really got around to figuring out the cause because I was bad at getting healthcare for myself. But it cleared up, weirdly, around the time I had my wisdom teeth taken out. I got my life back after that, and I hope you do too very soon.

Wishing you the best and hope you get some answers with your upcoming visit.

load more comments (1 replies)
load more comments
view more: next ›
this post was submitted on 20 Feb 2024
157 points (86.2% liked)

[Outdated, please look at pinned post] Casual Conversation

6466 readers
1 users here now

Share a story, ask a question, or start a conversation about (almost) anything you desire. Maybe you'll make some friends in the process.


RULES

Related discussion-focused communities

founded 1 year ago
MODERATORS