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I was told at a young age that autistic people by definition don’t have empathy (I know how wrong that is now), which was an insurmountable barrier to realizing that I’m autistic. I have a huge number of absolutely textbook symptoms, but I couldn’t ever get past the empathy issue, because it’s an emotion I feel so strongly. I also have ADHD, so I ascribed all of the sensory issues, clumsiness, and social anxiety/difficulties to that and considered my echolalia, fixation with numbers/words, and the fact that I didn’t begin to speak at until I came out with full sentences at nearly four to be quirks. I thought getting frustrated to the point of tears over silly things because I couldn’t properly communicate my distress to others just meant I was immature.
I read about the double empathy problem on the same day that I had essentially interpreted for an autistic customer being served at our coffee shop by my coworker (the customer needed more time to decide what she wanted, but my coworker kept asking her if she wanted anything else, and she appeared to be too overwhelmed with the questions to ask for a moment). Then I realized that most of my favorite customers who don’t tip, but whom I just vibe with, were autistic and everything else just kind of clicked.
As a note, I haven’t been diagnosed, but I did have a therapist who thought I was autistic and referred me for a diagnosis multiple times, I just really didn’t think it was likely at the time, so I never made an appointment. I’m glad for that now and I’m not going to look for a diagnosis until I’m no longer an American citizen, but I start that process next month.
Good on you!
Yeah, empathy lol, it just runs rampant. It's like that diagram that should be a circle towards the outside being balanced but in my case is a total spiky ball.
Things I "should" empathize do nothing ('how can you be so insensitive') and other things totally tear me up. Why? Sometimes no idea. Being overwhelmed by everything is my standard.
By now from what I read the empathy thing is just about the appearance, which goes with pretty much anything else. A neurotypical would think and conclude so, on the surface.
I've also never had reactions to pain like other people. And thats a major social issue, since people don't react then, too. The logic is it can't be bad if you're not reacting like it.
What I found enlightening for me, since I am likely a highly masking individual:
https://www.youtube.com/watch?v=LuZFThlOiJI
Damn, that hit the mark. The most common adjective my parents used to describe me as a child in comparison to other children (so not things that they would say about all children they loved, like smart or kind or silly) was “adaptable,” and I really struggled with feeling very rigid as an adult. Looking back on it, I think I just didn’t know myself very well and couldn’t predict what would overwhelm me. Growing up has been a slow process of learning what does and does not occupy mental energy and how to maximize my spoons.
Edit: also regarding the pain thing: I’ve immigrated to Germany and learning how to complain has been both difficult and revelatory. I tend to consider myself happy and content up to about 70% pain/unpleasant feelings, which is… neither standard nor helpful. I frequently don’t realize that I’m hungry/thirsty/in need of a stretch or bathroom break until it causes problems. In trying to make conversation the way that Germans do, I started kvetching about things, which led to me noticing things that were bothersome. Like, I replaced my work shoes because I only realized they were uncomfortable because I mentioned them to customers. Plus, said customers gave me good advice on what shoes to get.
Interesting, I didn't know the spoons. I've always thought of an energy bar like video game status.
Now I am at about 6 different energy bars. Still not fully figured out which it what applies where.
The fight against neurotypical expectations is real though and a massive issue.
If you want some book recommendations:
The (female) Autists by Clara Törnvall
A fields guide to Earthlings
The former is more a personal experience report and the latter a (dry) analysis from one Autist. I don't see it the way he does fully and sometimes it's too abstract but in general, yeah.
However there's also the hard truth of "you'll lose" at the end.