this post was submitted on 22 Apr 2025
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[–] getoffthedrugsdude@lemmy.ml 3 points 10 minutes ago

I feel sick.

[–] DaddleDew@lemmy.world 32 points 2 hours ago* (last edited 2 hours ago) (1 children)

"... a new disease registry is being launched to track Americans with autism ..."

This is unbelievafuckingbly ominous.

[–] atzanteol@sh.itjust.works 10 points 47 minutes ago

It's exactly the sort of thing these conspiracy assholes claim has been done by others too.

[–] AngrySquirrel@lemm.ee 59 points 2 hours ago (2 children)

Medication records from pharmacy chains, lab testing and genomics data from patients treated by the Department of Veterans Affairs and Indian Health Service, claims from private insurers and data from smartwatches and fitness trackers will all be linked together, he said. 

The NIH is also now in talks with the Centers for Medicare and Medicaid Services to broaden agreements governing access to their data, Bhattacharya said. In addition, a new disease registry is being launched to track Americans with autism, which will be integrated into the data.

Between 10 and 20 outside groups of researchers will be given grant funding and access to the records to produce Kennedy's autism studies. Bhattacharya did not give details on how they would be chosen, but said their selection would be "run through normal NIH processes."

I don't want to be on a federal autism registry, especially under this regime. How long before RFK announces his "Final Solution" for the "Autism epidemic"?

[–] Blaster_M@lemmy.world 31 points 2 hours ago (2 children)

Sounds like not being diagnosed is a boon.

[–] tischbier@feddit.org 10 points 1 hour ago (2 children)

Yeah I’m very very glad I’m “just” ADHD. When I was diagnosed it wasn’t possible to be diagnosed as autistic and ADHD. They didn’t fully change that until I was well an adult. I was more ADHD as a kid so, ADHD it was.

I didn’t realize until I was middle aged that I’m probably level 1 and on the spectrum as well as ADHD.

So, it’s like you said, maybe a blessing in disguise. I just don’t want all my brethren and all of my sisters who did get diagnosed to face a horrible fate.

Us neurodivergent need to stick together. Justice for all.

[–] Uli@sopuli.xyz 7 points 1 hour ago

💯

Here's hoping nerodivergents can band together and rise in the shadows to create systems that are far better than what society currently offers, and outcompete to such a degree that the corporations atrophy and die.

[–] MuskyMelon@lemmy.world 5 points 1 hour ago (1 children)

You hope so. For your sake, I hope they leave you alone too.

[–] tischbier@feddit.org 5 points 1 hour ago

Thank you thank you. I have a strong feeling they won’t stop with just Autistic people. We will persevere. ❤️

[–] Uli@sopuli.xyz 3 points 1 hour ago

Have I finally flaked out enough that it's actually helped me?

[–] BrianTheeBiscuiteer@lemmy.world 12 points 2 hours ago (1 children)

Just as bad if not worse, they'll come up with some bullshit treatment that is at best useless and at worst harmful, and if you don't submit your autistic children to it you're "abusing them".

[–] atzanteol@sh.itjust.works 3 points 48 minutes ago

"People are saying bleach cures autism..."

[–] floofloof@lemmy.ca 21 points 2 hours ago

Hmm, Nazis tracking which citizens they consider inferior, while expanding the concentration camps. It might be time to stop them.

[–] shiroininja@lemmy.world 14 points 1 hour ago (1 children)

Lawmakers in Republican states have already been doing this. They got caught. I tried to warn people about this a year ago. They thought I was a nutter. I’m tired of being right.

[–] tacofox@lemm.ee 1 points 52 minutes ago

I noticed you noticing

[–] FuglyDuck@lemmy.world 27 points 2 hours ago (1 children)

UHG. this makes me ill.

Particularly because I do not want to participate in medical studies without my consent. Unfortunately, your doctors have been filing your private health data in for study for a fairly long time.

[–] AngrySquirrel@lemm.ee 12 points 2 hours ago* (last edited 2 hours ago) (1 children)

This isn't just about medical studies. They don't need "a new disease registry" "to track Americans with autism" in order to do medical studies...

In addition, a new disease registry is being launched to track Americans with autism, which will be integrated into the data.

[–] FuglyDuck@lemmy.world 19 points 2 hours ago

It’s for using it to remove undesirables.

RFK is a eugenics asswipe. He’s going to be using it to harm people.

Which, way back when I got into this row with my ex-doctor, it was “I want to maintain control of my data, I don’t want people using it without me knowing or without my consent.”

He laughed saying exactly this would never happen and I was being paranoid.

[–] henfredemars@infosec.pub 7 points 2 hours ago

No good things will come from this.

[–] ButteryNickel@lemmy.wtf 4 points 2 hours ago